Researchers at the LMCB are studying a number of severe disorders. They actively engage with patient and family groups in their research in many different ways, including:
- consultation
- collaboration
- sharing recent discoveries
- providing expertise to patient organisations
Resources for Batten Disease:
NCL Resource - gateway for clinicians, families, researchers interested in Batten disease.BATCure - European project focused on developing treatments for Batten disease.Batten Disease Family Association - charity that aims to support families, raise awareness and faciliate research into Batten disease.


Resources for Von Willebrand Disease:
Resources for platelet storage disorders:
Bleading disease support: